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Tag Archives: defect
The Big Day
The big day was roughly eight days after Micah was born. In that time he had gone from being a normal infant to struggling for his life. From breathing and crying to being intubated and sedated. From struggling to get … Continue reading →
Posted in Staying Strong
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Tagged be strong, being strong, chd, congenital, congenital heart, congenital heart defect, defect, heart, heart defect, heart surgery, heart syndrom, hlhs, hypoplastic, hypoplastic left, hypoplastic left heart, hypoplastic left heart syndrome, left heart, left heart syndrome, Norwood, Norwood surgery, stay strong, staying strong, strong, surgery, syndrome, the big day
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Numbers Games
The next several days were somewhat of a blur, in that nothing spectacular or specific occurred on any given day between day two and the day of the surgery. The wife and I fell into something of a routine. I … Continue reading →
Posted in Staying Strong
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Tagged be strong, being strong, chd, congenital, congenital heart, congenital heart defect, defect, heart, heart defect, heart syndrome, hlhs, hypoplastic, hypoplastic left, hypoplastic left heart, hypoplastic left heart syndrome, left heart, left heart syndrome, stay strong, staying strong, strong, syndrome
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Friends and Family
The response of our family and friends to our situation was nothing less than overwhelming. There were some phone calls with family right away and then periodically as time went on more calls would come. There were texts of support … Continue reading →
Posted in Staying Strong
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Tagged be strong, being strong, chd, congenital, congenital heart, congenital heart defect, defect, family, friends, friends and family, heart, heart defect, heart syndrome, hlhs, hypoplastic, hypoplastic left, hypoplastic left heart, hypoplastic left heart syndrome, iron, left heart, left heart syndrome, stay strong, staying strong, strong
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De-Sat
I could tell you that the night went well and that the hospital was very comfortable. I would have to add modifiers to that sentence though. Namely the phrase “for a hospital”. The room we were in had a couch … Continue reading →
Posted in Staying Strong
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Tagged be strong, being strong, blood oxygen saturation, chd, congenital, congenital defect, congenital heart, congenital heart defect, de-sat, defect, heart, heart defect, hlhs, hypoplastic, hypoplastic left heart, hypoplastic left heart syndrome, left heart, left heart syndrome, nicu, oxygen saturation, stay strong, staying strong, strong, syndrome
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Which way to the Cooks?
Hypoplastic Left Heart Syndrome, or HLHS is a congenital heart condition that has no known cause. The left ventricle, which pumps blood to the body from the heart, does not develop. The condition is usually accompanied by aorta issues as … Continue reading →
Posted in Staying Strong
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Tagged be strong, being strong, cardiac, cicu, congenital, congenital heart defect, defect, heart, heart defect, hlhs, hypoplastic, hypoplastic left heart syndrome, nicu, staying strong, strong
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The first 5 hours
My wife had gone to sleep. I was holding my son, Micah, now a day and a half old, in my arms, while sitting in a chair in our room at the hospital, reading things on my phone. He had … Continue reading →
Posted in Staying Strong
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Tagged be strong, being strong, congenital, congenital heart, defect, heart, heart condition, heart defect, hlhs, hypoplastic, hypoplastic left heart syndrome, left, left heart, left heart syndrome, prayer, stay, stay strong, strong, syndrome
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